A little prayer for Caleb

Caleb has had increased complications with his breathing ever since he was hospitalized last Spring for RSV. He obstructs his breathing often throughout the day, and when he's agitated we often have to hold his mouth open for him so that he can get a good breath. I scheduled Caleb for a tracheostomy surgery a few weeks ago because we wanted to see how we felt after taking a step in that direction. We've been really prayerful about whether or not this is right for Caleb. It has been a really difficult decision because Caleb has really good days, and then has really challenging days. On the good days, a trach doesn't seem necessary at all, but on the hard days, I can hardly bear to see how hard he works to breathe. Overall we've decided that a trach has a lot of potential to improve Caleb's quality of life, so we've decided to go ahead with the surgery which is scheduled for next Wednesday. We are also waiting to hear back about the possibility of doing a g tube surgery at the same time. My heart is so tender as I contemplate taking this step and changing the way we've taken care of Caleb up to this point. But I know Heavenly Father will wrap us all up in his arms and help us to have courage. If you have a quiet moment, please say a little prayer for our sweet boy! If you'd like a peek at what Caleb's been up to, take a peek at his blog www.winkfromheaven.blogspot.com